Essential Tremor Awareness Champions
We are pleased to elevate the voices of several impressive and inspirational ET Awareness Champions. Learn more about each champion below!
Brianna
Meet ET Awareness Champion, Brianna, a music professor, pianist and advocate who is using music to raise awareness and erase the stigma associated with tremor. To learn more about Brianna’s essential tremor story, and her ET Response Project, click the link below.
Donald
Completing daily tasks such as eating, writing and getting dressed are challenges that people with essential tremor face daily.
ET Awareness Champion, Donald, knows this all too well, experiencing his first symptoms of tremor in his teens. He now works to raise awareness through his writing and filmmaking. Check out his documentary, STILL, all about his life with ET.
Jillian
ET Awareness Champion, Jillian, admits that she used to skip school talent shows and plays because of her shaking hands. Now, she educates others about essential tremor during appearances and speeches as a pageant contestant.
Learn more about Jillian’s awareness and community service activities
Diann
ET Awareness Champion, Diann Shaddox, is an award-winning author and steadfast advocate for people living with essential tremor.
At first, Diann hid her own shaking hands, feeling embarrassed, angry, and ashamed. It was only through her writing that she found she wasn’t alone and felt empowered to take a stand.
This year marks the 10-year anniversary of the Diann Shaddox Foundation for Essential Tremor Research focused on raising awareness and advancing research for essential tremor.
Helen
Essential Tremor Awareness Champion, Helen, actively serves the ET community. As a support group leader, she offers a safe space to talk openly about the impact of ET on daily life, share ideas and feel connected.
And, as a person living with ET, Helen advocates for awareness. Each year, she works with the Governor’s office to declare ET Awareness Month in Connecticut. Her hope is to make others more accepting of essential tremor. Learn more about the Connecticut ET Support Group.
We use cookies to improve your experience and to help us understand how you use our site. Please refer to our cookie notice and privacy statement for more information regarding cookies and other third-party tracking that may be enabled.
For more information on Praxis, including our privacy policy, visit us at https://praxismedicines.com. If you have any questions, please email us at praxismovement@praxismedicines.com
© 2023 Praxis Precision Medicines, Inc.
